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TFMR Mama Story
It all started at 7 weeks pregnant. I had a big bleed and I was terrified, convinced I was having a miscarriage. An early scan was arranged for the next day and off my husband and I went steeling ourselves for the bad news. But, instead, we were told there was a heart beat… and another, it’s twins! We were shocked and immediately worried as I had been told, due to my bicornate uterus, that twins could be tricky. After many scans and a CVS test at St Georges (all came back OK,
Alice Macbeth
Apr 284 min read


TFMR Mama Story
Before we ever tried to have children, my husband and I had the conversations most couples hope they’ll never need. We talked about genetics, about chromosomal conditions, about what we would do if a pregnancy showed something was seriously wrong. I’m a paediatric nurse, so I’ve seen firsthand the lifelong impact severe disability can have — not just on the child, but on parents, siblings, marriages, and mental health. We knew, quietly but clearly, what our boundaries were. I
Aimee V
Jan 144 min read


TFMR - Severe Ventriculomegaly & T21
In 2021, we got pregnant with our rainbow baby and were over the moon excited. Everything was going so well, I felt great, all my tests came back normal - then on our 18 week scan our world changed forever. They discovered our sweet girl had severe ventriculomegaly. We had absolutely no idea what that meant, what that even was…doctors were trying to explain but it was all just a blur. After second and third opinions and many tests more, her diagnosis got worse and we decided
Chryssy
Nov 25, 20252 min read


I am a TFMR Mama
I write this over and over in my head and it's different every time. I'll never have the perfect words to concisely express the Everest-sized mountain of pain we've experienced this year. How do you convey the rolercoaster of emotions that is getting engaged in January, planning a wedding for September, finding out we were pregnant in April, surprising our immediate family with that news and a surprise small wedding ceremony in May - only to have the high of all that love and
Crista King
Nov 18, 20256 min read


For Humphrey
November came, two lines appeared, A whispered dream, a love so clear. Tiny kicks in thoughts we traced, A future bright, a heart...
Laura White
Jul 15, 20252 min read


Winding Valleys
I woke up one strange February day, feeling a peculiar kind of way With rumblings below and an unbecoming, squeamish glow After a night...
Lawrence's Mama
Jul 8, 20252 min read


TFMR for T18 Diagnosis
Myself and my husband had been trying to start a family since mid 2021. We found out that we were likely to require IVF . After an...
Sharon
Jul 1, 20254 min read


Her Name Is Juno
Our little girl was born at 20 weeks with an original diagnosis of anencephaly and a further diagnosis of triploidy. My wife and I...
Constance & Tanya
Jun 24, 20251 min read


TFMR Mama's Poem
In my arms, an emptiness, A pain that words cannot express. I carry you in thoughts each day, A love that won't fade away. Dreams of...
'B'
Jun 17, 20251 min read
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