Before we ever tried to have children, my husband and I had the conversations most couples hope they’ll never need. We talked about genetics, about chromosomal conditions, about what we would do if a pregnancy showed something was seriously wrong. I’m a paediatric nurse, so I’ve seen firsthand the lifelong impact severe disability can have — not just on the child, but on parents, siblings, marriages, and mental health. We knew, quietly but clearly, what our boundaries were. I

In 2021, we got pregnant with our rainbow baby and were over the moon excited. Everything was going so well, I felt great, all my tests came back normal - then on our 18 week scan our world changed forever. They discovered our sweet girl had severe ventriculomegaly. We had absolutely no idea what that meant, what that even was…doctors were trying to explain but it was all just a blur. After second and third opinions and many tests more, her diagnosis got worse and we decided

I write this over and over in my head and it's different every time. I'll never have the perfect words to concisely express the Everest-sized mountain of pain we've experienced this year. How do you convey the rolercoaster of emotions that is getting engaged in January, planning a wedding for September, finding out we were pregnant in April, surprising our immediate family with that news and a surprise small wedding ceremony in May - only to have the high of all that love and

November came, two lines appeared, A whispered dream, a love so clear. Tiny kicks in thoughts we traced, A future bright, a heart...

I woke up one strange February day, feeling a peculiar kind of way With rumblings below and an unbecoming, squeamish glow After a night...

Myself and my husband had been trying to start a family since mid 2021. We found out that we were likely to require IVF . After an...

Our little girl was born at 20 weeks with an original diagnosis of anencephaly and a further diagnosis of triploidy. My wife and I...

In my arms, an emptiness,  A pain that words cannot express.  I carry you in thoughts each day,  A love that won't fade away. Dreams of...

This past May, I was supposed to be celebrating the upcoming Mother’s Day as an almost mom of two, but life had other plans. On May 4th ,...

Two lines! You tell him, he knows. Poke and laugh, as your belly grows. Miniature, a mustard seed. You and him are all she'll need. Life...

I called Dmitri my miracle baby. My wife and I had decided a little over a year earlier that we wanted another child, a sibling for our...

Feb 2020 I am a Program Manager who is lucky enough to have a good job, own a house, I am married to a wonderful man, and I am a mother...

Whether you are here because you yourself have been privy to some amazing and not-so-amazing comments regarding your loss or because you...

My name is Carmen and I am a nurse, a yoga instructor, a farmer, and a writer. I am also the mother of three beautiful children. However,...

Oh mama i am so sorry you are here and that you are having one of "those moments"..these moments can come at any time..for some it may be...

"I spent the next hour alone in a room sobbing and praying to just wake up from this nightmare." My name is Victoria, and my husband Brad...

If I could write a letter to myself after getting bad news at my anomaly scan facing into my TFMR here is what I would say:- Oh poor...

I was 16 weeks when we received warning bells for a genetic disorder. It was an early anatomy scan but late for genetic testing as they...

"There is no good option. My heart was going to be torn out of my chest no matter what happened" My husband and I planned for her - she...

In honour of Elijah, we are publishing this poem from his Mama For Elijah In a perfect world You’d be in my arms Aching back from...

Going through baby loss is one of the most difficult things parents can go through- but what is not often as mentioned is how one goes on...

Ellie's gift app & TFMR mamas are coming together to raise funds to develop a tfmr specific area within the Ellie's Gift app and to...

"Our lives and identities are unequivocally altered and reduced to “before” and “after.” We were married less than two years when we...

Grey Diagnosis: Dandy-Walker is rare. Even more rare to present as ours did, a true genetic fluke not associated with the X chromosome or...